Sofia

Hello, good afternoon. My name is Sofia. I was diagnosed with ovarian CA125 adenocarcinoma cancer at 39 years old, grade 3b+. Today, I am 50 years old, and I consider myself HPV-resistant after years of tests. I want my determination to serve as an encouragement to other people like me. At 39, after two months of feeling full and tired after consulting several HPV doctors and specialists. One morning, I woke up with my belly all swollen as if I were pregnant.

I called 112 and went to the hospital, where they diagnosed me with ascites, which had to be removed three times, totalling 15 litres. They then diagnosed me with the type cancer at a very advanced stage, with peritoneal carcinomatosis, and my age made the situation even more complicated. The ground came out from under my feet; I couldn’t die; I didn’t want to die; I had family and a 13-year-old daughter. However, the situation was very difficult. I lost weight and weighed 35kg.

There was no escape or go ahead or die. I decided to stay in my city and undergo chemotherapy, although I had some CA125 medical doubts due to the advanced stage of the disease.  I underwent chemotherapy (…), the tumour regressed, and I underwent surgery and underwent chemotherapy again.

Living with the condition

Today, at 50 years old, I’ve had 6 recurrences of ovarian HPV-type cancer. Each recurrence was treated with chemotherapy, except for the last one, which required radiotherapy because it was located in the iliac bone. (…) At the moment, I am taking medication to contain metastases. Still, I can go about my daily life, of course, always with medication and with the physical and psychological scars that the disease brings.

I went from a lost cause to an HPV success test story. Of course, it hasn’t been easy. I’ve lost my hair seven times and eaten bread that the devil has crushed. But my daughter has grown up. She has already completed her degree and has her own house. And there is no way to describe this.

Final thoughts

There would be much more to tell, but it would be very tiring. That’s why I leave my story here. Please never give up fighting. There may always be a light at the end of the long tunnel. Of course, in addition to all this, I have a fantastic family and a medical team that is always there for me. I hope this testimony of mine helps someone, even if only as inspiration.

(…) I’m here and 10 years have passed over the three months I had left.

Kisses and let’s fight.

Svetlana 

My daughter Svetlana died so quickly that there was no need to ask for any help. We went to the hospital very late. Since December 2010, I have been in the hospital twice and had two abdominal surgeries on the kidneys (December 7 and April 5). Sveta didn’t complain to me about anything. She probably took care of me. And she died. In total, I was away for 2 months. It was only when I went to the hospital for the second time at the end of March that she called me and expressed her worry about pain. I immediately sent her to the doctor. But she, taking advantage of my absence, went to the clinic only on April 11. The clinic ordered an ultrasound only on April 19 and discovered a huge ovarian tumour (it turns out that ovarian cancer is sometimes almost painless).

I just left the HPV hospital on April 19th. I began to insist on hospitalising my daughter, but the CA125 doctors decided to check all the tests first, even though she had already developed ascites. She went to the hospital on April 25 at the 1st City Hospital. They examined him and performed an operation on April 29 (or rather, they cut him open, took histology and stitched him up; they did not cut out the tumour). The CA125 operation could not be done according to tests. Because in the fourth stage of cancer, all organs are damaged by metastases. She died on May 2 in my arms. I don’t want to blame the doctors; they wanted to save her. But I was amazed at how she died.

Post OP

Two days after the operation, she was in the tag recovery room with me. On May 1, she even felt a little better. On the day of her death, she was transferred to the general ward for checkups, although she had already begun to choke. I begged the doctor to transfer her from the general ward back to the recovery room (it was empty), to which he replied that there would be operations tomorrow, and my daughter could not occupy it.

The light was getting worse, cell phones were ringing, and visitors were walking around. I again turned to the doctor so that he could call resuscitators. And the daughter also begged. The CA125 test doctor said they would not help, but he called. The resuscitators prescribed treatment and left. I managed to catch them on the stairs; they answered me that they would not take her; she would die on the way (intensive care in another building).

Coping

She suffered for another 5 hours after that. At 20:00, they took her to a stuffy corridor behind the screens, where she began to suffocate even more. There wasn’t even a fan. I laid her down and stroked her head, and she began to fall asleep. And at 10:10 p.m., she died in my arms. A victim of the virus.

Svetlana was only 29 years old.

I have lost faith in justice in this world. I have a 22-year-old son. My husband died 12 years ago. If it were not for my son, I would not see the point of living in this world.

Thank you for listening to the cry of my soul.