Sweets are a tool the child was willing to try new things.

Thomas V.

Autism and Nutrition. Result: Here I tell you about my son. ⁠ ⁠

I want to tell you a little about Anaemia nutrition tests. Before the rollback, at about one and a half years old, the child tried everything, even the sausages offered by grandma—although not as the main food. It was more like pampering to CBC test needs.

And he liked to chew everything.

The First Signs of Trouble: Refusal to Eat

But already at 2 the first problems appeared.

It was time to wean. And it seemed like it was time. There was nothing useful in that milk anymore, although there was an immeasurable amount. But here’s the problem. The child refuses other food. He does not try, and what he tries – does not go further than his mouth. Everything is spat out or vomited. No persuasion or deception worked to help the CBC levels to improve.

We tried giving him everything: purees, treats, porridge, fruits, and vegetables in jars and not in jars. All baby food and mixtures (cow’s or goat’s milk) were out.

There was an opportunity to go to Finland on a weekend and buy some Anaemia designed baby treats there – and he didn’t eat even that. A lot of money was flushed down the toilet, closed feeding was given away in “give away for free” groups. Mothers will understand the despair – when a child does not eat anything except you. Three years are approaching, and the child is still on the breast. There was an attempt not to give the breast. One. The child did not eat anything offered. For a day … and screamed for 6 hours in a row.

A Breakthrough: Fruit Porridge Discovery

But then I found it: fruit porridge, powdered, with peach—more precisely, with a peach flavour.

Mom suggested it.

In the 90s, we were supplemented with very liquid semolina.

He did not eat semolina but dissolved three spoons of powdered porridge in a bottle of warm milk, added a spoon of sugar, and shook well. This became the first serious replacement for breast milk. The CBC saga with the breast and unfinished porridge lasted for 4 years. Fortunately, by 3.8, he started eating bananas.

The child weighed well—4100—and my milk gave him enough calories. And he grew up to be a chubby little thing with chubby cheeks.

At 4 years old, vermicelli with butter and salt stuck to bananas. We replaced porridge with tea. He refused milk (any).

For about three months, he ate pasta and bananas every day.

Introduction of Sweets and Bakery Products

Then, I finally gave in and started stuffing the child with bakery products and sweets. At first, he spat them out, but sugar is a real n… kitty, so it was the easiest to introduce.

So buns, cookies, rolls, and chocolate appeared.

Sweets are very harmful, true. I realize and repent. But when sweets were introduced into the diet, the child was more willing to try new things.

Pancakes, cakes, and cheesecakes came into play. And to this day, one of these three dishes is present daily.

Then mashed potatoes appeared. Oddly enough, bacon—deep fried until crispy. Also not healthy, but close to nutritious. Now (my son recently turned 6), the diet includes chicken, pork, croutons, pancakes, fritters, cheesecakes, bananas and peeled apples, almost everything sweet. Mashed potatoes, sometimes pilaf, sometimes pasta. Boiled eggs and omelette. Oatmeal once a week and very rarely—cottage cheese (we have a life-and-death struggle for it).

Unfortunately, according to the tests and CBC reporting all this does not provide enough iron in the body; haemoglobin is around 104, ferritin is reduced, and iron is present but not sufficient.

They prescribed for the Anaemia recovery of a three-month course of matter and a multivitamin complex. He has been drinking it for four days.

Future Hopes and Continuing the Battle for Nutrition

I still hope to find options for preparing vegetables and fruits suitable for my son. I will fight for victory with nutrition.

But for now, this is it.

And how are things with nutrition in your children? Were there any problems with weaning?

Seriously, even a bandage wrapped around my chest to prevent access did not save me …

——–

Kristina

That’s how it should be, right?

I am in hospital due to severe anaemia. The situation is as follows: I am not the easiest patient – polyvalent allergy, nothing can be treated. This fact has been confirmed and reconfirmed three hundred times with documents – there are enough examinations and conclusions from the allergist to fill a whole folder. Well, and this. The doctor is a stern lady, apparently a fan of Dr. House with his signature: Everyone lies. Yesterday, we had a conversation about what to treat in the CBC profile test. Not only do I say, but I also show on paper that only Ferrum Lek can be used out of the absolute majority of iron preparations (and many with Anaemia have been tried).

Suspicious Medication on the Nightstand

Today, I return from CBC examination tests; there are a handful of tablets on the nightstand, no blisters, nothing. I decided not to drink them and wait for the rounds to ask what it was. He comes, I ask, and.. 90 per cent of what is prescribed are allergens, not potential, even quite proven. Empirically. In the same hospital. Only the attending physician was different. Even the discharge from the hospital indicated this fact.

I ask how so, and the doctor does not answer, but, breaking his voice, says: “IF YOU DON’T WANT TO, DON’T DRINK. YOU CAN NOT BE TREATED AT ALL. IF YOU HAVE A REACTION, I WILL PROVIDE HELP.” I probably did not drink them. Okay, it’s not that serious, nothing happened. The day before. They put in an IV. About 5 minutes later, I am covered in terrible hives; my face is swollen, my limbs are swollen, and everything is itchy.  The nurse sees all this, removes the system, and informs the Anaemia doctor.

Another Shift, Same Mistake

Today: another shift. Comes, asks how bad it hit yesterday; I take off the mask and show my still swollen mug. She says she doesn’t know what to do because the doctor prescribed the same medicine. Then she’s like… Okay, I’ll say that we used drips, but we won’t use drips. About 40 minutes later, she came and said that the doctor wouldn’t leave me alone, she was nasty, we’ll put in a drip when it starts, we’ll record the reaction, we’ll remove the reaction. They put it in. Same story. 5-7 minutes, and I’m ready to bathe in acid.

I was filled with such anger – it’s hard to describe; how is that possible? Or I don’t understand something, and these are just new clinical recommendations. It’s hard to assess the adequacy of the situation because… the doctor said it and prescribed it, and I’m used to trusting doctors…

Hemoglobin Levels and the Transfusion Dilemma

Here’s another thing. Hemoglobin is three times lower than normal – ~ 45 g / l. The doctor is categorically set on a blood transfusion, and I have contraindications – from an allergic reaction to who knows what at all. I consulted 3 haematologists at the regional hospital and 3 allergists – they almost unanimously said it was impossible. In the best case – the kidney will finally say goodbye to me. And it is like this … and alone, I will be sad without it. The tests for the Anaemia specialists, again, unanimously, independently of each other, wrote that we must replenish haemoglobin reserves with erythropoietin. The attending physician, a therapist, not only did not take their recommendations into account; they scheduled a consultation, but she still said that either a hemotransfusion and I signed the CBC consent, or she discharged me. There is no third option.

I am confused and unsure if I’m right to be concerned. Maybe they are doing everything correctly, and I, as a non-specialist, simply don’t understand the doctors’ actions?